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SPOR Summit 2015: Putting Patients First The inaugural SPOR Summit, bringing together leaders and partners from all core elements of the Strategy for Patient-Oriented Research (SPOR), was held May 19-20, 2015. Patients, policy makers, clinicians, funders, and researchers shared…

Reforming health care by sharing best practices Health research discoveries often lead to new and improved treatments and practices. When these occur, it is important that doctors be informed so that they can provide their patients with the best possible care. It is also…

Mapping Population Health: How the Maritime Health Atlas is improving health care planning Health research and health care planning are challenging enterprises. When a province or territory sets out its health-related goals, success depends on many factors, including the ability…

Bringing an Indigenous patient perspective to kidney research Kidney disease is often called “the silent killer,” as many people who live with this condition do not realize they have it until the disease has reached its later stages. In Canada, kidney disease is particularly a…

Patient research partners help crack the code of recruiting and retaining study participants Aida Fernandes, IMAGINE Executive Director Canada has among the highest rates of inflammatory bowel disease (IBD) in the world, with six million Canadians affected Footnote 1 . To…

Working Towards Better Care and Better Health in Newfoundland and Labrador When it comes to research in health care, engaging with patients and the public, users of the health care system, is crucial; particularly if that research leads to the implementation of some sort of…

Filling gaps in understanding diabetes in First Nations people Meeting of First Nations patient partners A pioneering report and a series of papers from Chiefs of Ontario (COO), in partnership with a research team funded by an Ontario SPOR SUPPORT Unit (OSSU) IMPACT award and…

Beyond accessibility: how the Jooay App helps families find inclusive play opportunities for children with disabilities and connects families to their communities Children with disabilities are often excluded from play, placing them at risk for health and social difficulties. The…

Network supports empowerment of Indigenous patients in diabetes research Indigenous traditions and respectful engagement are teaching researchers and health care professionals more effective ways of managing and reducing diabetes Once a disease primarily of adults, type 2…

Giving children with brain-based developmental disabilities a voice in research CHILD-BRIGHT Network fosters trust and confidence with patient-partners to create real change for children and families Carrie Costello (right), as CHILD-BRIGHT’s Parent Liaison, provides assistance…